Category Archives: Speechless

Understanding Health Assessments

As we watch the last episode of Speechless, Season One, it’s obvious that we have been given a rare and beautiful gift – an incredible look at what it means to live a life with CP. Both for the person and for the family.

We hope you feel the same way about our expert videos – which now comprise a library of 45 videos, dealing with critical issues across a broad spectrum. If you want to get a full sense of this information, you can see the entire library here.

For this last week, we turn to two more of our valued friends in the medical community to give us a sense of how to better understand the needs around CP: from the earliest moments, to the growing child. Dr. Andrea Guzzetta discusses General Movement Assessments, which allows us to detect the potential for developmental delay in a baby as young as three months. And Dr. Josh Hyman, who can help you understand x-rays that your child might need.

It has been a glorious season. All our love to our friends at Speechless. And to all our CPF families and friends.

Come back next week, when we’ll share our final thoughts on what this year has been like for us, some friends, and our ambassador, Micah Fowler.

Breaking Down Surgery

Parents are protective. That’s their job. So what happens when your child needs surgery? Not just once, but over and over again. Parents certainly understand the need, each and every time, but it sure doesn’t make the moment any easier.

Imagine knowing you can’t fully protect your child. Imagine the difficult decisions you need to make. Imagine the strength needed to keep going on and always being there.

That’s what this week’s Speechless episode is all about. The DiMeo family, as JJ gets surgery. This moment is something many people in the disabilities community know too much about.

However, there are parts of surgery we should know more about. So this week CPF introduces you to two of our close friends: Drs. Roye and Hyman. Both are orthopedic surgeons, who can explain some of the intricacies of hip and back surgery – in language we can all understand. Surgery never ever gets any easier, but understanding the process can help.

Unlocking Your Inner Confidence

Everyone feels like an outsider sometimes. We all have triggers which rile us up every time we hear that same…. thing…. about…. ourselves. Everyone has moments when they just want to get away from the people who don’t understand them – and only stop running if they find that world where they fit in.

And, yes, these things are also harder in the world of disabilities.

Getting someone to see you for the person you are and to look past things which feel dissimilar should be so easy, but if we are honest with ourselves, it’s not.

In this episode of Speechless, JJ finds himself in an iconic moment: Prom Night. With usual bravery, Speechless shares how tough and confusing these moments can be. It also shares the hopes which all of us will always chase after.

To help in that chase, CPF introduces you to two new friends: Dr. Heakyung Kim, who talks about social and medical issues around drooling, and Dan Herlihy, who talks about finding the things you love to do.

Enjoy tonight’s fantastic and poignant episode, P-P-PROM NIGHT. And, of course, save your last dance for CPF.

Gaining Independence

Everyone feels like an outsider sometimes. We all have triggers which rile us up every time we hear that same…. thing…. about…. ourselves. Everyone has moments when they just want to get away from the people who don’t understand them – and only stop running if they find that world where they fit in.

And, yes, these things are also harder in the world of disabilities.

Getting someone to see you for the person you are and to look past things which feel dissimilar should be so easy, but if we are honest with ourselves, it’s not.

In this episode of Speechless, JJ finds himself in an iconic moment: Prom Night. With usual bravery, Speechless shares how tough and confusing these moments can be. It also shares the hopes which all of us will always chase after.

To help in that chase, CPF introduces you to two new friends: Dr. Heakyung Kim, who talks about social and medical issues around drooling, and Dan Herlihy, who talks about finding the things you love to do.

Enjoy tonight’s fantastic and poignant episode, P-P-PROM NIGHT. And, of course, save your last dance for CPF.

School Skills

Every parent wonders how their child is doing in school. Are they making friends? Are they studying? Are they learning?

There’s rarely an easy answer. It’s rarer still in the world of disabilities. Students with CP and similar conditions often rely on many supports and services. From scanned materials, to augmentative communication, to paraprofessionals who sit beside kids and transcribe answers for tests. It’s no wonder that grades of kids with disabilities don’t always reflect their true abilities.

If you’re a parent of a child with disabilities, you’ll instantly relate to this week’s episode of Speechless, where Kenneth’s support of JJ goes a bit too far when he asks “JJ, is the answer A, or B, or, get ready, how about this one: Ceeeeeeee?” It’s a fabulously funny moment. Yet it’s an honest look at the real complexities around finding the right amount of support in the classroom.

We’re thrilled this week that our classroom has two super thoughtful experts, Kirk Behnke and Craig Bugaj, who explore how to find the right level of guidance and intervention – in everything from communication to taking tests.

The Developing Brain

In this week’s fabulous and hilarious episode of Speechless, JJ DiMeo heads to, of all places, the supermarket aisle to develop all sorts of clever strategies to assert his independence.

Learning to effectively tap into those skills should start early, with a focus on finding the best ways to support a developing brain. We hope this weeks insights – more from Dr. Ros Boyd, and new ones from Karen Janowski – will provide some great tips on how to make that happen.

Story Telling

If you want to understand someone’s life, listen to their stories.

We’re all learning to understand the DiMeo’s life as we watch their story on Speechless. However, for people with CP, stories can be harder to tell.

This week, our experts give tips on supporting storytelling for people who use augmentative communication. And Dr. Ros Boyd provides some non-fiction reading – about a critical concept: brain plasticity.

Our hope is these great friends of CPF help us all live happily ever after.

Supporting Communication

It’s been energizing – and a bit dizzying – as Speechless has looked at the diverse challenges faced by individuals who struggle with speech. But if there’s one thing we can take away, it’s that addressing these challenges is important. Communication, in any form, is central to life.

So as Speechless brings together a group of kids with diverse challenges for an Oscar Party, we’re bringing together a diverse group of experts to help you support the challenges faced by kids who use speech generating devices. Thanks to Pati King-DeBaun, Deanna Wagner, and Howard Shane for sharing their expertise and insights. In fact, we’re voting them all Best Supporting Speech Therapists!

Speech Generating Devices

Tonight, JJ goes AAC! (That means Augmented and Alternative Communication).

In tonight’s episode of Speechless, JJ finally answers the question: “Why do you use Kenneth instead of a speech device?”

The answer is a complex one – because communication is a complex thing. That’s particularly true with AAC. It’s not the way most of us communicate – and so it can be difficult for a parent or teacher to support.

This week begins a three part series on Speech Generating Devices. We know you’ll enjoy these valuable tips and insights from our experts. Share them with teachers and professionals. Share them with your kids. And, most of all, share the belief that we all have so much to communicate! (And that’s especially true for the writers, cast, and crew of our favorite TV show!)

CP: A Balancing Act

In this week’s episode of Speechless, JJ DiMeo confronts the challenge of loving chocolate too much. It’s a great episode, but it only hints at the many far more difficult challenges in the world of CP. From getting the supports needed for a good education, to dealing with the truly debilitating effects of body pains, to finding a life of love and understanding: having CP just makes things harder. Which is not to say it makes them impossible. Instead, with understanding, shared commitment, and knowledge, a life with CP can be just what we all desire: typical. In other words, life with CP is also like a box of chocolates. So eat up!

We hope you enjoy this week’s videos and the diverse and valuable insights from our experts.

Practical Challenges

When we think about disabilities, most people often go to the emotional aspects of it. But for families, many issues are in fact simply about logistics! How do you deal with schedules, helpers, adaptations, and getting around? Just who does what? And, just plain and simple, how can you possibly get done all the things that need to get done?!?

In this week’s Speechless, we see what happens when Maya is sick and Kenneth has to take a day off. It doesn’t just rock the boat: it rocks a few worlds.

So we hope our experts this week – one a parent advocate and one a daughter – give us all some insights and thoughts that help us all navigate all the very practical challenges which flow through a life with disabilities.

See Me, CP & All

If you ask people with disabilities about forming relationships, many will tell you that the biggest challenge is that the world just can’t see them as they are.

In fact, one of life’s great journeys is learning to see things with more than our eyes, and learning to appreciate the world more fully with all our senses and our full spirit.

This week, our friends at Speechless and our experts tackle these issue head-on. We hope you’ll enjoy watching Dr. James Rice, who finishes up his three part series on the pre-adult years of people with CP, and the dynamic Mo Buti, who offers additional insights on how we can all better understand and build great relationships that expand our mind and world.

Question to Micah: What has the cast learned from you?

CP: The Early Years

There are many parts of the human experience that we all share. But the specificity of growing up with a disability just isn’t one of them. Which is why it can be a bit disorienting to be a parent trying to raise a child with CP and do your best. The question of “how much do we understand another person?” is profound in any case, but perhaps it’s just a bit more so when your child has physical challenges that you don’t.

So as the DiMeo’s take a road trip this week, we invite you on a parallel trip. We know you’ll appreciate the valuable insights of Dr. Warschausky and Rice as they share their knowledge and experience in the specific physical and challenges of growing up as a child with CP.

Happy New Year to all our friends in the CP community. And to our friends at Speechless. So glad to be back.

The Creative Spirit

Given the many physical challenges associated with Cerebral Palsy, it’s often difficult to stay mindful of a person’s artistic and creative needs. When many individuals are non-verbal, it can also be hard to remember the importance of finding one’s voice. This week’s episode of Speechless brings wonderful insights and innovative answers to this conversation.

As we do every week, we support that conversation with some wonderful videos by our experts. So enjoy Dr. Joseph Dutkowsky’s passionate thoughts on artistic expression and Dr. Ted Conway’s thoughts on a perhaps quite distant future when thought can actually become speech.

All the best for the holidays. We’ll be putting out some special videos over these few weeks. And our experts will be back on January 4th.

Happy Holidays from all of us at CPF!

CP & The Body

Speechless just keeps covering more topics. And that means the series keeps bringing up interesting questions. Like just how does the body with CP work? How can we best understand it? And how can we best support people with CP to achieve their goals – whether that is participating more actively in sports, or just being able to get around with less pain and challenge.

We hope you enjoy this week’s videos, where you’ll learn about the Gross Motor Classification system – the way doctors best define the nature of an individual’s CP – and about Gait Analysis, which is the latest and greatest in evaluating a person’s movement. And don’t forget to check out this great sled hockey story about our friends in the Wheelchair Sports Federation’s New York Sled Rangers.

Disability & Romance

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Affairs of the heart are tough for us all. They can be especially hard for people with disabilities. The ups and downs of romance and dating can be much so more extreme when your body doesn’t always do what you want it to, when the words that are in your heart take longer to make their way to another’s.

Whether you’re an individual who has disabilities, a family member, or just someone who deeply feels the rhythm and thrum of love and longing, we hope you’ll enjoy and share this week’s videos and their many insights.

Recognizing Disabilities

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There is nothing more beautiful than family. And, now and then, there is nothing more infuriating. That can be especially true when a family includes someone with CP – and a relative who has a hard time understanding it.

Learning to understand what a family feels on the inside is a critical yet often elusive goal for many people. We hope this week’s videos help everyone reach them.

Therapy

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If you’re familiar with CP, you’re also familiar with the condition’s diverse physical challenges and demands. Dealing smartly with one’s body can be complex and elusive. So we want to help make sure you’re educated about some of the best therapies available and most importantly that these should be both fun and functional.

This week, we bring you two leaders in the field who take the complex ideas behind how the brain and body interact, and the ways we can encourage neuroplasticity, and make it seem not only simple, but engaging. We also provide some great resources if you want to take it further. Make sure to check these out. And if you like what you see, don’t forget to share your thoughts with us on Facebook

Self Expression

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High School is a complicated time. You’ve got to master the discipline that make you good student –  and the less obvious stuff that makes you a good friend. It’s an odd dance between appreciating the things that  are right and those that may be just a little bit wrong.

That can be even a bit more complicated when a high-schooler has disabilities. Which is exactly why we’re bringing you two great experts to share their thoughts on the full spectrum of skills and challenges that are part of every school experience. Oh – and we also have some great videos of other halloween wheelchairs. Enjoy!

Family Dynamics

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Growing up in a family affected by CP is like growing up in any family. Except it’s kinda completely different.

Every family is defined by the relationships within it: how the family works as a unit, and how each member finds their own independence. Watching the DiMeos navigate these waters brings insights for us all. And so do this week’s experts. We hope you’ll go to Facebook and share your insights with us. See you soon!

Kids & Parents

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What would you do for your child? How do you handle your own emotions as your child grows, defines his or herself, faces challenges, and rides the high school roller coaster of acceptance and rejection?

Those are tough questions for any parent. For the parent of a child with disabilities they might be even tougher. As we watch Maya DiMeo navigate this bumpy terrain, we’re probably asking ourselves many of the same questions. This week’s experts and our other related videos might just help you find some answers.

Communication

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Welcome back.

Speechless has certainly created a lot of buzz since last week’s premiere. Not surprisingly, some of that has been about alternative communication. For an individual with complex needs, is always a complex choice.

While JJ lights up the airwaves on ABC, we want to provide a chance for everyone to learn about some of the other options out there. Enjoy our expert videos on communication strategies and choosing an approach that’s right for you – as well as some videos of folks using a broad variety of Speech Generating Devices.