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Wade Shrader, MD

Freeman Miller Endowed Chair of Cerebral Palsy
Nemours Children’s Health

Dr. Wade Shrader is The Freeman Miller Endowed Chair of Cerebral Palsy at Nemours Children’s Health – Wilmington, Delaware, where he focuses his practice on the treatment of children with cerebral palsy and similar developmental disabilities.   He is also a Professor of Orthopedic Surgery and Pediatrics at Thomas Jefferson University.

His undergraduate degree was in aerospace engineering from Mississippi State University, and he worked as a flight engineer at NASA before entering medical school.  He is a graduate of the University of Chicago Pritzker School of Medicine.  He completed his residency in orthopedic surgery at the Mayo Clinic and his fellowship in pediatric orthopedics and scoliosis at the Texas Scottish Rite Hospital for Children in Dallas, Texas.   He has served as the Division Chief of Pediatric Orthopedics at Phoenix Children’s Hospital and Children’s of Mississippi, where he was also the Director of Pediatric Rehabilitation.

Dr. Shrader has served on multiple committees in POSNA, SRS, and AAOS.   He is currently the Deputy Editor for Pediatrics for the Journal of the AAOS and is the Deputy Editor for Neuromuscular for JPOSNA.   He has served on the National Advisory Board for Medical Rehabilitative Research for NIH NICHD.   He has served the community on the Board of Directors of Family Voices of Mississippi and Raising Special Kids in Arizona.

Wade is currently on the Board of Directors and the President of The American Academy of Cerebral Palsy and Developmental Medicine.  He and his wife are the proud parents of four children, two of whom have cerebral palsy.

Theresa Moulton, PhD, DPT

Assistant Professor
Department of Physical Therapy and Human Movement Sciences
Department of Pediatrics
Northwestern University

Dr. Theresa Sukal Moulton is an Assistant Professor at Northwestern University in the Department of Physical Therapy and Human Movement Sciences and the Department of Pediatrics. Dr. Moulton’s current role at Northwestern includes education of approximately 95 Doctor of Physical Therapy students per year in the areas of neuroscience, technology, pediatric physical therapy, and mentored research projects. In her own research, she investigates the underlying neural mechanisms of selective motor control in children and young adults with cerebral palsy, as well as infants who are at high potential of a cerebral palsy diagnosis. She serves as an assessor for several early intervention trials and loves to watch motor learning in action at these young ages. Also trained as an engineer, Theresa is most comfortable tinkering, graphing data, and finding creative and practical approaches to rehabilitation science, movement quantification, and mobility support. She collaborates with community partners in team-based activity interventions that use running frames for adolescents with movement challenges where athletes train together and participate in a community run event at the end of the season.

Dr. Moulton completed her PhD and DPT at Northwestern University and post-doctoral training in Dr. Diane Damiano’s laboratory at NIH. Theresa has been an active member of the American Academy of Cerebral Palsy and Developmental Medicine, serving in a range of leadership and service roles, as well as a longstanding member of the American Physical Therapy Association.

 

Sarah Winter, MD

Neurodevelopmental Pediatrician
Professor, Department of Pediatrics
University of Utah

I am a Professor of Pediatrics in the Department of Pediatrics at the University of Utah. I trained at the University of Minnesota, School of Medicine in Pediatrics and completed my fellowship in Developmental Pediatrics at Emory University in Atlanta, Georgia. While there, I was hired as a consultant to the Centers for Disease Control and Prevention at the National Center for Birth Defects and Developmental Disabilities participating in the research on autism and cerebral palsy. I continued my interest in developmental disabilities while working at both Cincinnati Children’s Hospital and Medical Center as well as at The Ohio State University in their Department of Pediatrics. At The Ohio State University and Cincinnati Children’s Medical Center, I directed the Cerebral Palsy Clinic; served as a developmental consultant in the Neonatal Follow-up Clinic; and directed the Spina Bifida Clinic. In 2006, I joined the Department of Pediatrics, University of Utah and have been able to continue my work in furthering a positive impact on expanding research and services for children and youth with a wide variety of developmental disabilities and their families.

Currently, I am the Medical Director of the University Developmental Assessment Clinics, including the Neonatal Follow-Up Program.  I am the Principal Investigator for the Utah Regional LEND grant and serve on several other grants to oversee the follow-up components of neonatal and cardiac treatments, including the Cerebral Palsy Foundation’s grant on early detection of and intervention for cerebral palsy.

Byron Lai, Ph.D, MS

Assistant Professor
University of Alabama at Birmingham & Lakeshore Foundation Research Collaborative
Children’s Hospital of Alabama

Dr. Lai is an Assistant Professor in the Department of Pediatrics at the University of Alabama at Birimingham (UAB), within the Division of Pediatric Rehabilitation Medicine. He has been conducting exercise research for people with disabilities for 8 years under the UAB / Lakeshore Foundation Research Collaborative. He completed his doctoral training and a postdoctoral fellowship at UAB, within the Department of Physical Therapy in the School of Health Professions. He further completed a postdoctoral fellowship in the Department of Pediatrics, School of Medicine. He has over a decade of experience in clinical exercise training among various groups of people with physical and cognitive disabilities.

Dr. Lai’s research interests focus on incorporating technology to provide enjoyable and accessible, evidence-¬based exercise programs for people with disabilities. Areas of interest include active video gaming, wearable monitoring devices, mHealth, and therapeutic exercise with music.

Mauricio R. Delgado, MD, FRCPC, FAAN

Professor of Neurology
The University of Texas Southwestern Medical Center, Dallas

Dr. Mauricio R. Delgado is a Professor of Neurology at The University of Texas Southwestern Medical Center at Dallas. He served as director of neurology at Scottish Rite for Children from 1990-2017. clinical and research interests on childhood motor disorders led him to establish specialized clinics in Cerebral Palsy, Holoprosencephaly and Hereditary Spastic Paraparesis. He was the co-chair of the steering committee of the National Institutes of Health Childhood Motor Disorders Task Force.    He was the leading author of the 2010 AAN practice guidelines on pharmacological treatment of spasticity in children with cerebral palsy. He was the president of the AACPDM from 2019-2020. He has more than 100 peer reviewed publications and has served on the Editorial Boards of Journal of Child Neurology and DMCN.

Dr. Delgado received his medical degree from the University of Monterrey in Monterrey, Mexico. He completed his training in pediatrics and neurology at the University of Ottawa in Ottawa, Canada. He received certification in neurology with special qualification in child neurology and neurophysiology from the American Board of Psychiatry and Neurology.

Mark D. Peterson, Ph.D., M.S., FACSM

Charles E. Lytle, Jr. Research Professor
Department of Physical Medicine and Rehabilitation
University of Michigan-Medicine

Mark D. Peterson is the Charles E. Lytle, Jr. Research Professor at the University of Michigan-Medicine (Ann Arbor, Michigan, U.S.), Department of Physical Medicine and Rehabilitation, a Fulbright Scholar, and an active member in the American Academy of Cerebral Palsy and Developmental Medicine (AACPDM), Australasian Academy of Cerebral Palsy and Developmental Medicine (AusACPDM), the International Society of Physical and Rehabilitation Medicine (ISPRM), and the American College of Sports Medicine (ACSM). Dr. Peterson’s work focuses on understanding factors that influence health and life expectancy among individuals aging with disabilities across the lifespan. This includes efforts directed at identifying precision strategies to prevent cardiometabolic dysregulation and secondary physical and psychological morbidity among children and adults with cerebral palsy, as well as a variety of frailty syndromes, and to better understand health disparities among individuals with disabilities from the context of access to preventive care and community wellness. Dr. Peterson has published more than 150 peer reviewed scientific articles in the fields of exercise physiology, rehabilitation research, physical activity epidemiology, healthcare disparities, and preventive medicine.

HEAKYUNG KIM, MD

Vice Chair and A. David Gurewitsch Professor of Rehabilitation Medicine
Professor of Pediatrics and Orthopedic Surgery
Columbia University Irving Medical Center and Weill Cornell Medical Center

Heakyung Kim, MD serves as Vice Chair and A. David Gurewitsch Professor of Rehabilitation Medicine and Professor of Pediatrics and Orthopedic Surgery of Columbia University Irving Medical Center and Weill Cornell Medical Center, Director of Pediatric PM&R at Morgan Stanley Children’s Hospital and Chief of Physiatry Department at Blythedale Children’s Hospital, New York, USA. She is the founding director of Pediatric Rehabilitation Medicine Fellowship Program at New York Presbyterian Hospital. Dr. Kim also serve as Associate Director of Pediatric Rehabilitation Medicine in the Weinberg Family Cerebral Palsy Center at Columbia University. She received her M.D. from the Medical School of Ewha Womans University in Seoul, South Korea and was trained at the Department of Rehabilitation Medicine of Yonsei University, School of Medicine in Seoul, South Korea and at the Department of Rehabilitation of UMDNJ-New Jersey Medical School/Kessler Institute for Rehabilitation. She is a board certified physiatrist in the USA and South Korea and holds subspecialty boards in Pediatric Rehabilitation Medicine and Brain Injury Medicine. She specializes in single event multilevel chemoneurolysis (SEMLC) with botulinum toxin and phenol/alcohol injections, botulinum toxin injections to salivary glands, musculoskeletal ultrasonography and pain management in children and adults with cerebral palsy. Her research interests focus on spasticity management and robotic therapy and exercise for weak spastic muscles in children with cerebral palsy and drooling management with botulinum toxin as well as quality of life for adults with cerebral palsy. Dr. Kim has been recognized as one of “America’s Top Doctors” by New York Magazine and Castle Connolly as well as a “Super Doctor” by New York Times. She is nationally and internationally regarded as an expert in pediatric rehabilitation medicine, especially pain management in people with cerebral palsy and spasticity management and drooling management with botulinum toxin as well as ultrasound guided injections. She was also served World Health Organization (WHO) as a member of development group for development of package of rehabilitation intervention 2030 for people with cerebral palsy.

LISA THORNTON

Dr. Thornton is the Division Chief for Pediatric Rehabilitation Medicine at Sidra Hospital in Doha, Qatar. And Assistant Professor of Clinical Pediatrics at Weill Cornell Medical College, with a clinical interest is in the holistic care of children with disabilities.  In her current role she is also focused on helping to improve care coordination and disability services in Qatar.   Before moving to Doha in 2017 her academic appointment was at the University of Chicago.  She was Medical Director of Pediatric and Adolescent Rehabilitation at LaRabida Children’s Hospital, and Schwab Rehabilitation Hospital.  Dr. Thornton received her undergraduate degree at Fisk University and her medical degree from the University of Michigan.  She completed pediatric specialty training at Children’s Memorial Hospital in Chicago (now Lurie Children’s) and her rehabilitation residency at the Rehabilitation Institute of Chicago.

Dr. Thornton  has been appointed to the Qatar Task force on the Health and Wellbeing for People with Special Needs, which is part of the Qatar National Health Strategy.  She has worked with numerous organizations which focus on advocating for the policy needs of people with disabilities.  As part of a strong parent-professional partnership with Reaching for the Stars she gave testimony to the US Senate Appropriations Sub-Committee on Labor, Health & Human Services to encourage specific funding for CP research.  She is a former board member of the American Academy for Cerebral Palsy and Developmental Medicine and was chairman of the Advocacy Committee for the same organization.

Dr. Thornton founded CAMP (Children with Adapted Mobility Play) Chicago, a summer camp that helps foster full inclusion of children with disabilities in various recreational and cultural activities throughout the Chicago area.  All activities are adapted to permit optimal participation for all the children regardless of physical limitations.  CAMP is free to the children and is funded entirely on donations.

Dr. Thornton has extensive media experience and has provided health commentary on The Dr Oz Show, The Steve Harvey TV Show,  NBC’s Today Show, CNN, ABC’s “Good Morning America” and “World News Tonight”, the CBS Morning Show.

BERNADETTE GILLICK, PhD, MSPT, PT

Department of Rehabilitation Medicine 
University of Minnesota Medical School

Bernadette Gillick, PhD, MSPT, PT, Neuroscientist and Pediatric Physical Therapist, is a McKnight Land-Grant Professor at the University of Minnesota within the Medical School/Department of Rehabilitation Medicine.  As Director of the Pediatric Neuromodulation Laboratory, her research is dedicated to understanding development and optimizing treatment after perinatal stroke and resultant cerebral palsy incorporating non-invasive brain stimulation, neuroimaging and neurorehabilitation.  Her external lab includes the Cerebral Palsy Foundation, National Institutes of Health (NIH), Cerebral Palsy Alliance Research Foundation, Foundation for Physical Therapy, and the American Academy of Cerebral Palsy and Developmental Medicine (AACPDM).  Dr. Gillick has received many awards, including the NIH Clinical Trials Fellowship, the American Physical Therapy Association Eugene Michels Outstanding New Investigator Award and Best Dissertation Award, and the Marquette University Outstanding Alumni Award. She speaks internationally on innovative technologies and interventions in perinatal stroke and cerebral palsy from infancy to young adulthood.  She serves on many related committees, including a Representative on the Global Professional Education Committee for the International Alliance of Academies of Childhood Disability, the research committee of the AACPDM, and as an NIH reviewer.   Her multiple publications incorporate a focus on the safety, feasibility and efficacy of pediatric brain stimulation assessments and interventions and the impact on impairment across the lifespan.   Dr. Gillick’s hobbies include silent winter sports and Bernese Mountain Dogs.

LAURIE GLADER, MD

Nationwide Children’s Hospital

Dr. Laurie Glader is Section Chief of the Division of Complex Health Care and Medical Director of the Comprehensive Cerebral Palsy Program at Nationwide Children’s Hospital.   A graduate of Stanford University and UCLA School of Medicine, Dr. Glader completed her pediatric residency and fellowship in Behavioral and Developmental Medicine at Boston Children’s Hospital.  Dr. Glader served as the Outpatient Director of the Complex Care Service and as Co-Director of the Cerebral Palsy and Spasticity Center at BCH for many years.  Dr. Glader has a research interest in how pediatricians can work with multi-disciplinary teams to enhance the lives of children with complex conditions.  She has also conducted research as part of the multi-site Transforming Healthcare of Women with Disabilities work supported by the Cerebral Palsy Foundation. She edited a book for generalists on the care and management of children with severe forms of cerebral palsy, has authored numerous papers and chapters, and speaks widely on topics related to children with medical complexity.

 

Dr. Glader has been an active member of the American Academy of Cerebral Palsy and Developmental Medicine and just completed her tenure on the Board of Directors. Over time she has served as a Commissioner of the Governor of Massachusetts on the Catastrophic Illness in Children Relief Fund, Co-Chair of the Committee on Disabilities in the Massachusetts Chapter of the American Academy of Pediatrics, an Advisor to the Birth Defects Monitoring Committee with the Massachusetts Department of Public Health, and Medical Director at the Cotting School for children with special needs.  

the Cotting School for children with special needs.

KATHLEEN FRIEL, PhD

Burke Medical Research Institute
Blythedale Children’s Hospital
Weill Cornell Medical College

Dr. Friel’s research focuses on the importance of motor activity in cerebral palsy neurorehabilitation. Her laboratory aims to improve hand function in children and adults with CP. Her research examines the neural connections that are important for dexterous hand control, and how hand therapies can strengthen these connections in people with CP.  Her research engages people with CP in intensive hand therapies, using intensive play-based therapy or robotic therapy. Her laboratory also uses non-invasive brain stimulation to study how intensive hand therapy changes motor circuits in the brain. By better understanding brain structure and function in children and adults with CP, it is hoped that scientists will best be able to devise new therapies for people with CP. Her laboratory also studies factors that contribute to motor impairments, such as sensory impairment and visual neglect. Her laboratory currently has NIH and foundation funding to study neural predictors of efficacy of hand therapy in children with CP, as well as robotic upper limb therapies for both children and adults with CP.  Her laboratory also examines the potential for non-invasive brain stimulation to boost the efficacy of intensive play-based hand therapy and robotic therapy.

Dr. Friel received her B.A. in Biology at Rice University, an M.S. in Neuroscience at the University of Texas Health Sciences Center at Houston, and a Ph.D. in Neurophysiology from the University of Kansas Medical Center. She completed a postdoctoral fellowship at Columbia University Medical Center. She also received a M.S. in Biostatistics from Columbia University, with a focus on patient-oriented research.

HANS FORSSBERG, MD, PhD

Department of Women’s and Children’s Health
Karolinska Institutet

Hans Forssberg, Professor of Basic and Clinical Neuroscience at the Department for Womens and Children’s Health at the Karolinska Institutet is also an active physician and researcher at the Astrid Lindgren Childrens Hospital at the Karolinska University Hospital. He is also the director of the Stockholm Brain Institute, as well as a member of the Nobel Assembly that selects each year’s Nobel laureate.

The focus is on the development of cognitive and motor functions in healthy individuals and in various neurodevelopmental disorders such as cerebral palsy, ADHD, DCD, autism spectrum disorder and language impairment. The research is translational using several longitudinal and clinical cohorts, as well as various animal models. The overall goal is to understand the neural mechanisms underlying cognitive and motor dysfunctions in order to develop new principles for prevention and intervention.

Deborah Gaebler-Spira, MD

SAC Chairman
Shirley Ryan AbilityLab
Northwestern Memorial Hospital
Children’s Memorial Hospital

Deborah Gaebler-Spira completed a Pediatric residency at the University of Chicago and then pursued a residency in Physical Medicine and Rehabilitation residency at the Shirley Ryan AbilityLab (previously Rehabilitation Institute of Chicago). She is board certified in Pediatrics, Physical Medicine and Rehabilitation and Pediatric Rehabilitation Medicine. She has been affiliated with Northwestern Memorial Hospital, Children’s Memorial Hospital as a Professor of Physical Medicine and Rehabilitation and Pediatrics at the Shirley Ryan AbilityLab for 25 years.

Her primary clinical work is with children with cerebral palsy and spasticity management. She is past president of the American Academy of Cerebral Palsy and Developmental Medicine. Her research interests have been in management of spasticity and have obtained United Cerebral Palsy grants to evaluate the impact of Botulinum Toxins on the child as well as dance for motor learning and the child with cerebral palsy. She has collaborated with the Rehabilitation Institute of Chicago Bioengineers on measurement of Hypertonia and worked with the National Institute on Disability and Rehabilitation Research, Rehabilitation Engineering Research Centers grant “Technologies for Children with Orthopedic Disabilities.”

Unni G. Narayanan, MBBS, MSc, FRCSC

Hospital for Sick Children
University of Toronto
Holland Bloorview Kids Rehabilitation Hospital

Unni Narayanan is a Pediatric Orthopaedic Surgeon and Senior Associate Scientist at the Hospital for Sick Children in Toronto, where he is currently the Fellowship Director of Orthopaedic Surgery. He is an Associate Professor in the Department of Surgery at the University of Toronto. He is a consultant at the Holland Bloorview Kids Rehabilitation Hospital where he also holds an Adjunct Senior Scientist position at the Bloorview Research Institute.

A native of Madras (Chennai), India, and a graduate of Madras Medical College, he completed his orthopaedic residency at the University of Minnesota, a cerebral palsy (CP)/gait analysis fellowship at Gillette Children’s Hospital in St. Paul, and a pediatric orthopaedic fellowship at The Hospital for Sick Children. He completed a MSc degree in Clinical Epidemiology at the University of Toronto, before he was appointed to his current position.

Dr. Narayanan’s clinical practice is has a major focus on the care of children with CP. His research program has focused on understanding patient priorities and their role in clinical decision making, and for the development and validation of meaningful outcome measures, and applying these in clinical trials to evaluate the effectiveness of interventions and health technologies for pediatric musculoskeletal disorders particularly CP. His research is funded by the Canadian Institutes of Health Research (CIHR) and other agencies. His work has been recognized with numerous awards, including the Mac Keith Press New Investigator Award in 2005 from the American Academy of Cerebral Palsy & Developmental Medicine (AACPDM) for the development and validation the Caregiver Priorities & Child Health Index of Life with Disabilities (CPCHILD©) Questionnaire, which has been widely translated and adopted worldwide. In 2014, he received the Arthur H. Huene Memorial Award from the Pediatric Orthopaedic Society of North America (POSNA) for his work on CP hip outcomes. He currently leads two major projects: a randomized trial to evaluate the effectiveness of gait analysis for surgical decision making in children with ambulant CP; and an international multi-centre (26 sites in 13 countries) study of hip outcomes in cerebral palsy (CHOP study), both funded by CIHR.

James Rice, MD

Medical Services
Women’s and Children’s Health Network
Adelaide SA

James is a Paediatrician and Rehabilitation Physician with over 20 years’ clinical experience. He was recently appointed as Deputy Director, Medical Services, Women’s and Children’s Health Network, as part of the Network leadership team. James is the current President of the Australasian Academy of Cerebral Palsy and Developmental Medicine, one of the three founding academies in the world of the International Alliance of Academies of Child Disability (IAACD). Part of James’ vision in this role is to broaden the reach of AusACPDM to the broader Asia-Pacific region to a wider audience of clinicians and researchers in the fields of Cerebral Palsy and other childhood-on set disabilities.

After training in leading tertiary children’s hospitals in Adelaide, Melbourne and Sydney, with additional international training in centers in the UK and Canada, James has developed high-level clinical leadership skills through the establishment of the Victorian Paediatric Rehabilitation Service in Melbourne, and expansion of Paediatric Rehabilitation Services in Adelaide and the Northern Territory. With a unique mix of clinical, research, teaching and health management skills, James has the skill set required in the growing global field of Paediatric Rehabilitation.

The Australasian Academy of Cerebral Palsy and Developmental Medicine, a leading organization focused on providing professional education on, and raising broader awareness about childhood disabilities.

Nathalie Maitre, MD, PhD

Director of Early Development & Cerebral Palsy Research,
Emory University School of Medicine

Dr. Maitre is a board-certified neonatologist and research investigator with a focus on neurodevelopment in high-risk newborns and developmental interventions after neural injury. Before joining us at Emory and Children’s Healthcare of Atlanta, she was the Director of the NICU Follow-up Program and the Medical Director of NICU Developmental Therapies at Nationwide Children’s Hospital. In the Department of Pediatrics at Emory, she serves as the Director of Research in Early Development and Cerebral Palsy. She will help support the expansion of the Neonatal Follow-up Clinic (DPC), grown to national repute by the late Dr. Ira Adams-Chapman, and, in collaboration with the Division of Neurology and Department of Rehabilitation, is developing a program focused on early detection and intervention for infants at risk for cerebral palsy. This Children’s and Emory program is now the lead site of the National Implementation Network funded by the Cerebral Palsy Foundation. In support of her growing Implementation Science program, Dr Maitre is a member of the international IMPACT for Cerebral Palsy workgroup and has developed caregiver-based motor learning programs for UNICEF and the World Health Organization.

Dr. Maitre’s lab’s research focuses on neurodevelopment in high-risk newborns and rehabilitation of long-term disabilities. She emphasizes the development of quantitative measures of neural function in infants to allow the rational design and testing of parent-based and technology-assisted strategies. A career development award from the NICHD allowed her to elucidate mechanisms through which the NICU environment contributes to cortical sensory processing differences in hospitalized neonates and their neurobehavioral outcomes in childhood.  For the past 15 years Dr. Maitre has conducted multidisciplinary research with neuroscientists, engineers and therapists in neurophysiology of NICU infants and rehabilitation. She now leads NIH-and foundation-funded of parent-driven sensory-motor interventions such as constraint and bimanual movement therapy, and pacifier-activated voice players. In outpatient and inpatient settings. She has a robust technology portfolio developed in collaboration with SmallTalk and Enlighten Mobility teams. She continues to work with engineering and mathematical modeling teams in the US and Switzerland to develop new methodologies for brain-based assessment and therapy in infants and young children.

Dr. Maitre mentors undergraduate, graduate, postdoctoral trainees in rehabilitative therapies, developmental medicine, neurology, neonatology and engineering, who are interested in developing a career in the neuroscience of infant developmental interventions.

Jan Willem Gorter, MD, PhD, FRCP(C)

Jan Willem Gorter, MD, PhD, FRCP(C)
CanChild Centre for Childhood
Disability Research
McMaster University

Jan Willem Gorter, MD, PhD, FRCP(C) Physical Medicine and Rehabilitation, is a Professor in the Department of Pediatrics. He is Director and a scientist at CanChild Centre for Childhood Disability Research (www.canchild.ca) at McMaster University. He holds the Scotiabank Chair in Child Health Research.

Jan Willem has training in pediatric and adult rehabilitation medicine (physiatry) with a special clinical and research interest in transitional services and life course health development. His research focuses on the themes of family, function (daily activities and participation) with a special interest in fitness / active lifestyle and in transitions from adolescence to adulthood (future).

In his work, Jan Willem has found the World Health Organizations’ International Classification of Functioning, Disability and Health (ICF) extremely powerful in teaching professionals and families. He recognized the possibility to formulate ideas about the ICF and childhood disability with ‘F-words’. He co-authored the article entitled ‘The ‘F-words’ in childhood disability: I swear this is how we should think!’ which has been downloaded almost 7,000 times since its publication in 2011. Jan Willem leads a research program that advances the knowledge of health development of people with disabilities, and that enhances research capacity through mentoring and training. Jan Willem’s research is frequently published in peer-reviewed publications in leading journals.

Gary Goldstein, MD

Kennedy Krieger Institute
Johns Hopkins University School of Medicine

Gary Goldstein is the President and Chief Executive Officer of Kennedy Krieger Institute. He is also a Professor of neurology and pediatrics at Johns Hopkins University School of Medicine and a Professor of environmental health sciences at Johns Hopkins University School of Hygiene and Public Health. Dr. Goldstein received his medical degree from the University of Chicago. He completed residencies in pediatrics (University of Minnesota, Minneapolis), neurology (Stanford, Palo Alto) and child neurology (Johns Hopkins) and was Director of the pediatric neurology program at the University of Michigan (Ann Arbor) before returning to Baltimore to lead Kennedy Krieger Institute. Past research activities focused on the role of brain capillaries in the formation of the blood brain barrier and the mechanisms of capillary injury in toxic brain disorders. Kennedy Krieger Institute serves children and young adults with a wide variety of neurologic disabilities, including cerebral palsy, traumatic brain and spinal cord injury, autism and learning/behavioral disorders. The Institute is the home of the F.M. Kirby Center for advanced MRIbrain imaging, a comprehensive autism center with a large early intervention program, a special education school, inpatient and outpatient sub-specialty clinics and active community programs. Research efforts include preclinical neuroscience laboratories, studies of acquired and genetic neurologic childhood diseases and a new clinical trials center. A strong focus of the research program is on the neuroplasticity of developing brain and the translation of recent discoveries to clinical and educational settings.

Dr. Peter L. Rosenbaum

Professor of Paediatrics
CanChild Centre for Childhood Disability Research
McMaster University

Peter Rosenbaum, MD, FRCP(C), Professor of Paediatrics at McMaster University, held a Tier 1 Canada Research Chair from 2001-14. In 1989 he co-founded CanChild Centre for Childhood Disability Research at McMaster.

Dr. Rosenbaum has held over 80 peer-reviewed grants; is a contributing author to over 325 peer-reviewed journal articles and book chapters; and has been a guest lecturer in 30 countries. He co-authored ‘Cerebral Palsy: From Diagnosis to Adult Life’ (2012), and co-edited ‘Life Quality Outcomes of Children and Young Adults with Neurological and Developmental Conditions’ (2013) with Dr Gabriel Ronen. In September 2016 he and colleagues published an innovative book Ethics in Child Health: Principles and Cases in Neurodisability.

Dr. Rosenbaum has worked with almost 70 master’s and doctoral level students, at the Universities of Oxford, Utrecht, Witwatersrand, ACU and Toronto in addition to McMaster. From 2012-14 he was a consultant to UNICEF’s Expert Consultation on the Collection of Data on Children with Disabilities, and in October 2016 her was invited back to a special meeting to discuss UNICEF’s future plans for childhood disability.

Dr. Rosenbaum’s accomplishments have been recognized nationally and internationally. He has received the Ross Award from the Canadian Pediatric Society (2000); an Honorary Doctor of Science, Université Laval (2005); was the first Canadian President of AACPDM (1996-8); received the Academy’s Mentorship Award (2007) and its Lifetime Achievement Award (2014). In June 2015 he received the inaugural Holland Bloorview Medal of Excellence in Childhood Disability.

Murray Goldstein DO, MPH SPECIAL ADVISOR

For the period 1953-1993, Dr. Murray Goldstein was a commissioned medical officer in the United States Public Health Service (USPHS) and a member of the staff of the National Institutes of Health (NIH); for the final 13 years at the NIH he served as the Director of the NIH National Institute of Neurological Disorders and Stroke. He was an Assistant Surgeon General in the USPHS with the 2 star rank of Rear Admiral.  Following his retirement from the USPHS, he served as Director of the United Cerebral Palsy Research and Educational Foundation from 1993-2005 and medical consultant to the United Cerebral Palsy Association. He is now a medical research consultant to several national organizations and the US government.

Dr. Goldstein is a 1947 graduate of New York University (B.A.). He served in Europe in the tank corps of US Army during WW II and is a recipient of the Purple Heart. He is a 1950 graduate of the Des Moines University College of Osteopathic Medicine. He completed a rotating internship and then a residency in internal medicine at the Des Moines Osteopathic College Hospital and a fellowship in neurology at the Mayo Clinic (Rochester, MN). In 1959, he received a Master of Public Health degree (Epidemiology) from the University Of California School Of Public Health at Berkeley, CA.

He is the recipient of two honorary doctoral degrees in medicine (M.D.) and seven in science (D.Sc.) from universities in the U.S. and abroad. He also is the recipient of a U.S. Presidential Letter of Commendation, 3 national public service awards from the USPHS and achievement awards from 4 osteopathic organizations and 8 citizen organizations.  He has been on the editorial board of seven scientific journals, served on the scientific advisory committee of five national health organizations and on the Board of Trustees of three osteopathic medical colleges and four national health organizations. For 8 years, he was chair of the WHO Task Force on Stroke and Other Vascular Disorders of the Brain. He is a founding member and past President of the American Osteopathic College of Occupational and Preventive Medicine and served for 12 years on the American Osteopathic Board of Preventive Medicine (now an emeritus member). He was designated a “Great Pioneer in Osteopathic Medicine” by the American Osteopathic Association, by Des Moines University and by the NYSOMS.

At this time, Dr. Goldstein is an active member of the Academy of Medicine of Washington, D.C., having served as its President for the period 2004-2006. He is a Senior Lecturer in Neurology at the Uniformed Services Medical School in Bethesda (USUHS) and a discussion leader in its course on medical ethics. He has been a member of the Advisory Board of three osteopathic colleges, an emeritus member and scientific consultant to the Board of Directors of three national health organizations and serves as a scientific consultant to the NIH, NIDRR and the US Department of Health and Human Services.

Dr. Goldstein has 54 publications in scientific journals, books and government publications.

Socially, Dr. Goldstein and his wife recently celebrated their 58th wedding anniversary. They have 2 daughters, 5 grandchildren and 12 great grandchildren. Dr. Goldstein has served three terms on his housing community’s Board of Directors. Mrs. Goldstein is a home maker, excellent cook and an accomplished amateur artist (oil painting).

Dr. William W. Andrews, Ph.D, MD

Chairman and Professor
Obstetrics and Gynecology
University of Alabama at Birmingham

William W. Andrews, Ph.D, MD, is the Charles E. Flowers, Jr. Endowed Chair of Obstetrics and Gynecology, Professor and Chairman of the Department of Obstetrics and Gynecology at the University of Alabama at Birmingham (UAB). Dr. Andrews earned his Ph.D in physiology at the University of Texas Health Science Center at Dallas in 1980 and graduated cum laude from the University of Alabama School of Medicine in 1984. He completed an obstetrics and gynecology residency at UAB, and a maternal-fetal medicine fellowship at the University of Texas Southwestern Medical Center. He is board certified in obstetrics and gynecology, and maternal-fetal medicine. Dr. Andrews has extensive clinical, research, and training expertise in maternal and fetal health. He is a past site principal investigator for UAB in the Eunice Kennedy Shriver NICHD Maternal-Fetal Medicine Units Network and also the Genomics and Proteomics Network for Preterm Birth Research. His research interests focus on obstetric infections including infectious etiologies of preterm birth.

Dr. Jan Brunstrom-Hernandez, MD

Pediatric Neurologist and Director
1 CP Place

Dr. Jan Brunstrom-Hernandez, MD, is a Pediatric Neurologist and Director of 1 CP Place, PLLC, a clinic founded in 2015 in Plano Texas to help children with cerebral palsy live their very best lives. Prior to moving with her husband to Texas, Dr. Jan (as she is known by her patients) was the founder and director of the Pediatric Neurology Cerebral Palsy Center at Washington University School of Medicine and St. Louis Children’s Hospital from June 1998 to December 2014. She also established several adaptive sports programs for her patients including martial arts, swimming and basketball. In 2003, she founded the Carol and Paul Hatfield Cerebral Palsy Sports Rehabilitation Program at SLCH (now in its 12th year) that includes Camp Independence, an intensive adapted summer sports program for children and adolescents with CP.

Dr. Jan graduated from the Medical College of Virginia at Virginia Commonwealth University in Richmond, Virginia and completed her pediatric neurology training at St. Louis Children’s Hospital at Washington University School of Medicine. She has first hand experience living with cerebral palsy. She was born 3 months prematurely and has spastic diplegia. Dr. Jan is a steering committee member of the International Multidisciplinary Prevention and Cure Team for cerebral palsy (IMPACT for CP), and a member of the Child Neurology Foundation Board of Directors.

Dr. Hank Chambers, MD

Rady’s Children’s Hospital & Health Center
Children’s Specialists Orthopedic Center

Hank Chambers, MD, is a pediatric orthopedic surgeon at Rady Children’s Hospital in San Diego. He also serves as a Professor of Clinical Orthopedic Surgery at the University of California at San Diego. After medical school at Tulane University School of Medicine, he completed an orthopedic surgery residency at Brooke Army Medical Center in San Antonio, TX.He finished a pediatric orthopedic surgery fellowship in San Diego under David Sutherland, Scott Mubarak and Dennis Wenger in 1990.

Dr. Chambers is currently the David Sutherland Director of Cerebral Palsy Research at Rady Children’s Hospital. He was the Chief of Staff at Rady Children’s Hospital San Diego from 2004-2006 and currently serves as the director of the Motion Analysis Laboratory and the 360 Sports Medicine Program. He is active nationally in many organizations including the American Academy of Orthopedic Surgeons, the Pediatric Orthopedic Society of North America, and the American Academy of Pediatrics. He is a Past President of the American Academy for Cerebral Palsy and Developmental Medicine and is the current President of PRISM, a pediatric sports medicine research society. His wife, Jill, is active in many local and national patient advocacy groups and is a healing touch provider at Rady Children’s Hospital. His son, Sean (32), who has cerebral palsy, is currently in an assisted living situation in San Diego and his other son, Reid (31) is an orthopedic surgery resident at the Cleveland Clinic.

Dr. Ted Conway, Ph.D

Professor & Head
Department of Biomedical Engineering
Florida Institute of Technology

Ted Conway, Ph.D, is currently the Department Head and Professor of Biomedical Engineering at the Florida Institute of Technology in Melbourne, FL. Prior to returning to Florida he was a National Science Foundation Program Director for the: 1) General & Age Related Disabilities Engineering Program (GARDE); 2) CBET-National Robotics Initiative (NRI); 3) CBET-Broadening Participation Research Initiation Grant in Engineering Program (BRIGE); and 4) Science and Technology Center (STC): Emergent Behaviors of Integrated Cellular Systems (EBICS) in the Chemical, Bioengineering, Environmental and Transport Systems Engineering (CBET) Division of the Engineering Directorate. Before taking the position at NSF he was the Associate Dean for Research Services and a Professor in the School of Education at Virginia Commonwealth University. Prior to his appointment at VCU he was the Program Director for the Research in Disabilities Education (RDE) Program in the Education and Human Resources (EHR) Directorate at NSF while he maintained his tenured position as Associate Professor in Mechanical, Materials and Aerospace Engineering at the University of Central Florida (UCF) in Orlando, FL. Before arriving at UCF, he accepted the tenure-track position of Assistant Professor in Mechanical Engineering at the University of Akron (U of A) in Akron, OH. He was promoted to Associate Professor and held a joint appointment in Biomedical Engineering at the U of A.

Dr. Conway received his B.S. degree in Chemistry from Florida State University and the M.S. and Ph.D. degrees in Theoretical and Applied Mechanics in the College of Engineering at the University of Illinois at Urbana-Champaign. While a Ph.D. student, he was a Summer Federal Employee for the Department of the Navy at the Naval Underwater Systems Center in Newport, RI and the Naval Research Laboratory in Washington, DC.